Next week we have some major appointments at UNC (all on the same day). We'll be seeing her ENT, pulmonologist, GI doctor and nurse practitioner, and her speech therapist (from UNC, not our local ST). We're planning to have some major Nissen talk since we're reaching the end of maximizing medical treatment for Mackenzie's reflux. The airway committee will discuss Mackenzie on Tuesday and offer their opinion, since Mac is on the airway team.
The GI nurse practitioner called me today and whereas we had originally agreed that I would wait until January (when Mac's bronch was scheduled) to finalize the Nissen plans, she is wanting to do things sooner -- which is a huge shock to me. The current plan is to have the GI doc, ENT, and pulmo all get together to do a rigid scope, flexible scope, and endoscopy all at the same time. That same day, the gastric motility people will place an impedance probe to measure how much Mackenzie is reflux (not just the acidity, but also the volume). Unfortunately that means Mac will be admitted into the UNC PICU for 24 hours. I'm very uneasy about this because of the vast amount of H1N1 cases in their PICU as well as Mackenzie being confined to a hospital bed. But I'm sure I'll just grind my teeth and go through with it. (Actually I know I will.)
Alrighty - here are some pics to enjoy... that I haven't posted on FB, for once! ;o)
Chasing the kitty...
Chasing the kitty some more... this time headed into the kitchen...
And Miss Mac all up on the TV watching Noggin (erm, Nick Jr now?) This was taken right before she started dancing to the song that was on. :oD
2 comments:
I'll sending you one...talking about chasing...
Kitty's are AWESOME! Aren't they? LOL.
Don't you love when the docs decide to add one thing on top of another like that? They did the same thing with Tristan.. all the same docs, too! lol. Started out as just an MRI, but they figured since he had to be knocked out might as well as go for it all. I guess it's better than splitting it all up and having to put them under or sedate them more than once. That would be scary to be there while they have all those H1N1 cases tho! Has she gotten an H1N1 shot?
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